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What Can a Child with Autism Expect in Speech Therapy?

If you are a parent or a professional who has had experience with a child diagnosed with autism, you know that they are all as different as the colors under the sun. Speech therapy services areBlog-Autism-and-Speech Therapy-Main-Landscape typically recommended and necessary for kids diagnosed with autism, as they may have difficulty communicating effectively. These services will be tailored to the individual to ensure the child is making progress and achieving developmental milestones. No two speech therapy sessions are the same, as will be the case for your child. However, there are overarching goals that you can expect your child to be working towards.

Here are factors you should expect to be consistent for a child diagnosed with autism that is receiving speech therapy services:

  1. Speech therapy will be individualized.

The speech language pathologist will complete an evaluation of the child’s current speech and language skills. Based on the results of the evaluation and any observations made, goals will be formulated to target areas to improve.

  1. Speech therapy will target functional communication.

This may mean different things depending on the level of the child. Whether the child is verbal or nonverbal, therapy will address making sure the child is effectively communicating their needs and wants. If the child is nonverbal or has significant difficulty utilizing verbal language, Augmentative and Alternative Communication (e.g., pictures, sign language, iPad, etc.) may be implemented. Therapy may also target talking about events, telling stories, answering questions, asking questions, commenting, expressing opinions, and participating in conversations.

  1. Speech therapy will target social language.

Social language is also known as pragmatic language and includes using language for a variety of purposes (i.e., greetings, informing, demanding, etc.), changing language according to the needs of the listener or situation, and following rules for conversation and storytelling. In order to warrant a diagnosis of autism, the child has already been determined to have a deficit in social communication and interaction. Treatment goals may include maintaining eye contact, initiating and terminating conversations, maintaining topics of conversation, identifying emotions, and utilizing appropriate body language.

The above goals are targeted in a variety of ways, again dependent on your child. Sometimes direct education is provided prior to practicing skills in activities, role-play scenarios, or structured real-life situations. Other times, skills are targeted during play and motivating activities for the child. No matter the skill level of your child with autism, speech therapy is an integral piece to their progress and successful functioning.

NSPT offers services in Bucktown, Evanston, Deerfield, Lincolnwood, Glenview, Lake Bluff, Des Plaines, Hinsdale and Mequon! If you have any questions or concerns about your child, we would love to help! Give us a call at (877) 486-4140.

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Katie Hesch

Katie Hesch

Katie Hesch, MS CCC-SLP, is a certified speech-language pathologist with experience and love for working with the pediatric population. She earned her Bachelor of Science degree from Purdue University in Speech, Language, and Hearing Science and her Master of Science degree from Indiana State University in Communication Disorders. Katie worked with pediatric clients during her graduate studies at Indiana State University and during her hospital externship with Lakeland Healthcare in Niles and St. Joseph, MI. She also completed a placement in the school setting at the elementary and high school levels. Her experience includes work with autism, language, feeding, articulation, reading, and phonological disorders. Katie is trained in the Orton-Gillingham Method of Reading Instruction and holds a Professional Educator’s License through the state of Illinois. One of her speech pathology loves is language therapy. She enjoys incorporating and targeting language in functional ways through the use of daily routines and family-specific activities.

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Traveling With a Child Who Has Autism

The word “travel” can bring a sense of excitement and joy, because you are going on a vacation or to visit relatives or to explore something new. However, the word “travel” can also bring feelings of anxiety or stress. Blog-Traveling-with-Autism-Main-Landscape

Traveling with a child with autism spectrum disorder (ASD) can seem overwhelming, especially when it comes to flying.

Here are some tips that can help a family prepare for flying with a child on the autism spectrum:

  1. Call the airport prior to your travel date and see if you can schedule a “trial run” to acclimate your child to the surroundings. During one of my therapy sessions I took a child to O’Hare with his parents to prepare for the many transitions involved in navigating an airport. We were able to start from the beginning of pulling up to the parking lot, riding the train and walking up to the security desk. We took pictures of each step so the child had a schedule and felt comfortable the day of the flight. Many large airports have guides to assist families with special needs children through the airport experience. Call to find out how to set up a guide for your family on your travel day.
  2. Provide your child with a schedule of “what’s going to happen, once you are on the airplane.” Make your child aware of what boarding the airplane will look like, what your seat number will be, what waiting for the plane to take off is like, the pre-flight security guidelines, take off and what to do during the plane ride.
  3. Have your child help plan activities during the plane ride. Bring favorite toys and games to help keep your child occupied.
  4. Have your child watch videos and listen to sounds of the airplanes. This is especially important for those kiddos who are sensory avoiding. Prepare your child for all the sensations he or she may experience on the airplane including the noise, ears popping, the vibration of the plane, what the seats will look like, what standing and going to the bathroom may feel like, etc.
  5. Finally, prepare your child for what happens when the plane lands and collecting your luggage.

Talk to your therapists and ask them to participate in the planning process. Talking about the process a few sessions before the travel date can instill confidence and help eliminate fear. Call the airports that you are flying in and out of for any resources and help available for your family.

Lastly, enjoy the vacation!

Check out these valuable resources for popular vacation spots and how they accommodate families:

NSPT offers services in Bucktown, Evanston, Deerfield, Lincolnwood, Glenview, Lake Bluff, Des Plaines, Hinsdale and Mequon! If you have any questions or concerns about your child, we would love to help! Give us a call at (877) 486-4140.

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Abby Rohlfing

Abby Rohlfing

Abby Rohlfing is a certified Occupational Therapist. She first received her Bachelor’s degree in Psychology also from the University of Indianapolis and then went on to earn a Masters in Occupational Therapy from the University of Indianapolis in December of 2012. During her graduate program, she worked at a cerebral palsy clinic for kids ages 0-15 and babysat for some of the children during the weekends. She completed one of her level II fieldworks at an Autism clinic. There she worked with children and young adults ages 5-22. Also while attending the University of Indianapolis, she completed a research project entitled: Influences on the Transition from Student to Occupational Therapy Practitioner. Currently, Abby is going back to school to receive her doctorate in health sciences. While at NSPT Abby has worked with varying diagnosis’ and kids of all ages. She currently is the Director of Operations and helps to manage the operations of the clinical and admin staff.

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What Exactly is a Social Group for Children with Autism?

We interviewed Latha V. Soorya, PhD from the Rush University Medical Center to learn about the study of social skills groups for children with autism.

Many children with autism are working toward learning, building and strengthening their social skills. The Autism Assessment, Research, Treatment and Services Center (AARTS Center) at Rush University Medical Center has dedicated their mission to on-going research in hopes to find new interventions to help those with autism. Latha V. Soorya, PhD explains and answers some questions regarding their newest study on social skills and the use of Oxytocin. early autism

Oxytocin is a hormone that plays an important role in social bonding and connections. Social skills groups for children with autism are widely used and well-liked. The Autism Assessment, Research, Treatment, and Services Center at Rush is studying both of these treatments to better understand how to improve social connections in children with Autism Spectrum Disorder (ASD). We are looking for 8-11 year old children with ASD to participate in a unique study called ION: Integrated Oxytocin and NETT (Nonverbal synchrony, Emotion recognition, and Theory of mind Training).

What is the benefit for parents? Families will receive support from therapists and other parents during parent groups that run at the same time as the social skills groups. Qualifying families will receive evaluations and treatment from licensed psychologists, child-psychiatrists, and therapists at no-cost as part of their participation in the social skills research study. The AARTS Center has run the social thinking group in the past, and a parent shared their positive feedback with us, saying, “We liked connecting with other parents during parent group and still use the materials from group to help our son focus on other people’s thoughts and feelings.”

How can parents & clinicians use the results? Before the study is published, families will receive results from their child’s evaluations as well as information about their progress. After publication, the AARTS center will share results with participating families, community partners, and the academic/medical community. Our hope is that the ION study will target social skills development in a new way, and that parents and clinicians will see lasting changes in the way that children with ASD apply these skills across settings.

Has similar research been done in the field? This is a unique study that combines promising research from two fields. Intranasal oxytocin may increase attention to social cues (e.g. where someone is looking) and social skills groups are well-liked and may help improve some aspects of social behavior. However, research also shows that changes from social skills groups, as well as intranasal oxytocin, do not last very long. This study is the first to examine what happens when the two treatments are combined.

What are you most excited about exploring in this study? We are most excited about this study’s potential to develop a more powerful, longer-lasting treatment for critical social thinking skills—skills we know are critical to navigating many life experiences and building social relationships.

Latha V. Soorya, PhD, is a clinical psychologist, board-certified behavior analyst and assistant professor of psychiatry at Rush University Medical Center. Soorya serves as the research director at the AARTS Center at Rush and brings expertise in diagnosis and intervention development to the research program.

For more information on the study, please contact Anthony Burns at 312-942-6331 or email Anthony_burns@rush.edu.

North Shore Pediatric Therapy

North Shore Pediatric Therapy

North Shore Pediatric Therapy is a group of experienced and dedicated Thought Leaders in pediatric therapy. We believe passionately in helping each child blossom to their ultimate potential.

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Occupational Therapy’s Role in Improving Self-Care Performance in Children

The role of the occupational therapist, when working with clients of any age, is to support participation and daily functioning. For a child, one of the primary occupations is self-care. Self-care Blog-Self-Care-Skills-Main-Landscapeskills, which include feeding, toileting, dressing, bathing and grooming, are classified as Activities of Daily Living (ADL’s), because they are a critical part of a child’s overall health and participation each and every day. In order to participate in self-care, a child must have component skills within a variety of performance areas, and delays in any of these areas can make seemingly simple tasks feel nearly impossible.

During an initial evaluation, an occupational therapist will help you determine which performance deficits or barriers within the child’s environment are causing your child to struggle with self-care. The OT will first obtain information by asking you questions about your home setup, your family’s routines, what kind of assistance your child currently needs to perform age-appropriate self-care skills, and what your goals are in terms of self-care independence.

These questions will help the therapist obtain a snapshot of your child’s current self-care performance and provide more information about the home environment in which your child is performing. The therapist will also complete a comprehensive evaluation of your child’s underlying skills through clinical observation and standardized testing to determine potential causes of delayed self-care skills.

Below are a variety of performance areas an occupational therapist will assess that could contribute to self-care performance:

  • Motor performance: A child’s physical ability to perform the motor tasks required for a self-care skill is dependent on his or her strength and endurance, range of motion, body awareness, grasp, manual dexterity, and bilateral coordination. In addition, a child may have decreased motor planning, or difficulty generating an idea for and executing a specific movement pattern.
    • Example: A child may be unable to tie his shoes because he cannot maintain a pincer grasp on the shoelaces.
  • Executive Functioning and Attention: A child may have difficulty sustaining attention to a self-care task, sequencing the steps of a task in an efficient order, or remembering when and how to do the task at all.
    • Example: A child may not be able to remember or mix up the order of steps to tying shoes.
  • Sensory Modulation: A child may have decreased sensory modulation, or ability to filter out irrelevant sensory stimuli. Children with poor sensory modulation may be hypersensitive to input, which can often make children very uncomfortable in their own skin, easily distractible, or easily upset and overwhelmed. Other children may be hyposensitive and not notice certain important sensory input. You can read more about how sensory processing impacts self-care and hygiene in one of our other blogs, “Horrible Haircuts and Terrible Toothpaste” http://nspt4kids.com/occupational-therapy/horrible-haircuts-and-terrible-toothpaste-helping-your-child-with-sensory-processing-disorder-tolerate-hygiene/
    • Example: A hypersensitive child may be bothered by the feeling of their socks and refuse to wear tie shoes; a hyposensitive child may not notice that his shoes feel or look funny when on the wrong feet.

Once the evaluation is complete, the occupational therapist will be able to determine if the child would benefit from ongoing occupational therapy. Future treatment would focus not only practicing specific self-care skills, but also engaging in activities that facilitate the overall development of underlying motor, sensory integration, and executive functioning abilities. In addition, the therapist will work with you to adapt your child’s environment through the use of home modifications, visual supports, and adaptive equipment to support performance. Through all of these modalities, the occupational therapist will be able to increase your child’s participation in self-care activities, thereby increasing his or her independence and overall development.

Check out one of our previous blogs on self-care written by a Board Certified Behavior Analyst: Self-Care Skills for Children with Autism

NSPT offers services in Bucktown, Evanston, Deerfield, Lincolnwood, Glenview, Lake Bluff, Des Plaines, Hinsdale and Mequon! If you have any questions or concerns about your child, we would love to help! Give us a call at (877) 486-4140.

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Amanda Langer

Amanda Langer

Amanda Averack Langer, MS, OTR/L, is also a licensed occupational therapist. Originally from Connecticut, Amanda attended college at the University of Rochester, where she pursued a double major in Brain and Cognitive Science and Music. Prior to obtaining her license in occupational therapy, Amanda gained experience in special education as a 4th grade resource teacher. She also has experience in inclusive and adaptive arts programming for children and adolescents with special needs. Amanda attended the University of Illinois-Chicago, where she received her master's degree in Occupational Therapy. Amanda has clinical experience at OTA-The Koomar Center, a world-renowned pediatric clinic engaged in research and treatment of Sensory Processing Disorders, as well as the Rehabilitation Institute of Chicago working adults undergoing physical and neurological rehabilitation. When she is not working with NSPT, Amanda loves to cook, attend concerts and plays, enjoy the outdoors, and sing with her a cappella group, the Southport Singers.

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How Do I Find a Special Needs Planning Lawyer?

This guest post is from Benjamin Rubin.

Let me begin by asking you a question. If you needed heart surgery, would you go to a general practitioner or an internist? Of course you would not entrust your heart surgery to anyone but an Blog-Special-Needs-Lawyer-Main-Landscapeexperienced heart surgeon. Likewise, when you need special needs planning, you shouldn’t be considering a general practitioner, or even a general estate planning attorney.

So, what is special needs planning?

The attorney should be experienced not only in drafting the two kinds of Special Needs Trusts, but also be experienced dealing with the Social Security Administration and the state when they review the trusts upon application for SSI and Medicaid, or upon redeterminations. The attorney should also be familiar with guardianship and the alternatives to guardianship, as well as how to navigate successfully the state’s children and adult services system for individuals with special needs including intellectual and/or developmental disabilities, mental illness, or those with significant physical disabilities. We often refer to it as the Illinois “maze” for services.

In addition, you want an attorney who will know, and advise you promptly, when new laws, rules, or procedures occur that impact your planning. You want to find an attorney or firm that can assist you, with compassion and understanding. Many special needs planning attorneys are themselves parents or siblings of individuals with special needs and “get it.”

I suggest that the first place to visit is www.specialneedsalliance.org, The Special Needs Alliance (SNA) is a national, not-for-profit, association of experienced special needs planning attorneys, a majority of whom are fellow parents or siblings. Membership is by invitation. I was honored last year to be invited as one of the youngest members to ever be invited to join the SNA and my father is honored to serve as President-Elect of that national organization. In fact, three of the four attorneys in our office are invited SNA Member Attorneys, and the fourth is an Affiliate SNA Member attorney.

Another source is www.specialneedsplanners.com. The Academy of Special Needs Planners (ASNP), a national group, is owned by three attorneys and is open to all attorneys, regardless of experience. My father was a charter member of that group and I remain a member of this group. There are many excellent special needs planning attorneys that are members of ASNP.

However, if you are considering an attorney who is not a member of Special Needs Alliance, I suggest you ask some questions such as:

  1. How many “third party special needs trusts” have you prepared in the past month? Six months?
  2. How many “first party special needs trusts” have you prepared in the past month? Six months?
  3. If the Social Security Administration or the State of Illinois has questions about the trust(s) you drafted, will you “handle” those questions without any additional cost/fees?
  4. How many adult guardianships have you handled and powers of attorney have you drafted for individuals with special needs in the past year?
  5. What other areas of practice does that attorney handle (check his or her web site)? That is, are they also doing business law, traffic, divorce, bankruptcy, personal injury, etc.? If they are practicing in other areas of law, then they will not be able to adequately stay current with the constant changes that take place in the area of special needs planning.

Finally, you are not just looking for someone to draft a document, but you are looking for a relationship with a firm that will be going down that road to peace of mind with you for many years.

NSPT offers services in Bucktown, Evanston, Highland Park, Lincolnwood, Glenview, Lake Bluff, Des Plaines, Hinsdale and Milwaukee. If you have questions or concerns about your child, we would love to help! Give us a call at (877) 486-4140 and speak to one of our Family Child Advocates!

New Call-to-Action
bnrbarmjrBenjamin Rubin limits his law practice, as does the firm of Rubin Law, to Special Needs Legal and Future Planning for his fellow families of individuals with special needs. Benji serves as Vice-Chair of the American Bar Association’s Special Needs Planning Committee, is a member of both the Academy of Special Needs Planners and, by invitation, the Special Needs Alliance, the national not-for-profit association of special needs planning attorneys, is President of SIBS (Supporting Illinois Brothers and Sisters), the Illinois chapter of the national Sibling Leadership Network, which is an organization of adult siblings of individuals with intellectual disabilities, developmental Disabilities, mental illness, among other special needs, is a member of the Board of Directors of The Arc of Illinois, is a member of the Clearbrook Associate Board (Clearbrook is an agency serving over 7,000 children and adults with intellectual and developmental disabilities, one of whom is Benji’s brother Mitchell), is a member of the SEDOL (Special Education District of Lake County) Foundation Board of Directors, and serves on the Advisory Council of Encompass a joint venture that in partnership with Jewish Child & Family Services, Jewish United Fund, JVS Chicago, JCC Chicago, Keshet, and The Center for Enriched Living and Center for Independent Futures, seeks to provide adults with I/DD a full array of financially sustainable, community-based services and supports.Having Mitchell as a brother profoundly shaped who Benji is today, and thus the type of law he chose to practice. His personal experiences as a sibling offer a unique perspective into the responsibilities that come with caring for a sibling with special needs. Now, as an adult, those sometimes present and future responsibilities he will share with his older sister regarding his brother’s care, are a concern that he shares with all brothers and sisters of individuals with special needs.

North Shore Pediatric Therapy

North Shore Pediatric Therapy

North Shore Pediatric Therapy is a group of experienced and dedicated Thought Leaders in pediatric therapy. We believe passionately in helping each child blossom to their ultimate potential.

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How to Make Financial and Legal Decisions for My Child with Special Needs

This guest post is from Benjamin Rubin.

Estate planning for parents of a child with special needs is, regretfully, a very complex process. In order to provide for a “special needs” child’s financial security to assure that he or she remains blog-legal-and-financial-main-landscapequalified or able to qualify in the future for government benefits such as S.S.I. and Medicaid, and to protect any inheritance or gift from claims of the government for reimbursement for benefits provided to him or her prior to our death or receipt of the gift, parents must properly plan now. More importantly, we must plan differently than other parents who do not have a child with special needs.

The facts are that in Illinois, as is the case in most states, without proper wills and trusts, a child with special needs may inherit property or receive gifts only to be then disqualified from receiving government benefits. Additionally, without proper planning and drafting of estate plan documents, the government may claim reimbursement from the child’s inheritance or gift for benefits provided to the child prior to the parent’s death or receipt of such a gift. This result is true even with “traditional” family trusts with “spendthrift” provisions that many attorneys use for all parents. One of the primary objectives in estate planning for parents of a child with special needs is to assure that the child remains qualified and eligible for government entitlement programs, while protecting the family’s assets, and the child’s inheritance, from seizure by the government as “reimbursement.”

My parents, like nearly all parents of a child with special needs, do not want my brother to rely solely upon the government to provide the level of care that they, my sister and I desire for him. The good news is that there are viable alternatives. A special form of a trust has become the appropriate and preferred estate planning document for families such as mine. Illinois law provides that such a trust established for the benefit of an individual with special needs shall not be liable to pay or reimburse the State (and by current regulations, the Social Security Administration), or any public agency for benefits received. Illinois law also provides that property, goods and services purchased or owned by such a trust for and or used by or consumed by the beneficiary, are not to be considered assets of the beneficiary.

The second type of trust “option” is commonly referred to as an OBRA or “pay-back” trust. This second form of a special needs trust is needed to preserve government benefits and still receive personal injury or medical malpractice settlements, inheritances left directly to a child with special needs, or assets already in his or her own name.

As family members we must become familiar with the laws concerning “guardianship of an adult disabled person.” Parents must also attempt to educate their “chosen” people who will act as Custodial Guardians and Trustees about the relevant laws, regulations, programs and entitlements affecting or benefiting their child with special needs, as well as about their “plans” and desires, including the estate plans.  Parents must consider the school district, “residential alternatives,” special recreation association, religious programs available to individuals with disabilities and vocational or workshop opportunities available in the vicinity of their chosen custodial guardians.

Parents must also convince grandparents and other relatives that they are not doing their “special needs” grandchild or relative any favor by treating them the same as other beneficiaries in their own wills and trusts, but that they should leave the “inheritance” to the special needs trust that parents have created for such purpose.

There are many, many other topics that a family of a child with special needs may need to consider which we plan to cover in future blog topics, including:

  • When using the newly permitted ABLE Accounts might make sense and what states currently make them available to Illinois residents.
  • If the parents are divorced and child support is being paid to an adult child with special needs, how must the child support be paid to ensure benefits are protected and what other considerations such as life insurance and health insurance even after age 26 might need to be brought up in the marital settlement agreement?
  • If one or both of the parents has a public pension such as TRS, SURS, the Judges Retirement System Pension, police pension, fire department pension, and the US Military retirement pension, among others, many are permitted to be left as a continuing annuity to a special needs trust for the benefit of an adult child with special needs for their entire lifetime so long as there are certain, sometimes very specific, provisions in the trust.
  • What if the parents need skilled nursing care and are worried they will spend all of their assets and have nothing left to leave to their child’s special needs trust? How can the special needs trust be drafted to allow the parents to use their child’s trust to qualify themselves for Medicaid to pay for their own skilled nursing care?
  • What should be in a “letter of intent” document to educate the “future team?”

NSPT offers services in Bucktown, Evanston, Highland Park, Lincolnwood, Glenview, Lake Bluff, Des Plaines, Hinsdale and Milwaukee. If you have questions or concerns about your child, we would love to help! Give us a call at (877) 486-4140 and speak to one of our Family Child Advocates!

New Call-to-Action
bnrbarmjrBenjamin Rubin limits his law practice, as does the firm of Rubin Law, to Special Needs Legal and Future Planning for his fellow families of individuals with special needs. Benji serves as Vice-Chair of the American Bar Association’s Special Needs Planning Committee, is a member of both the Academy of Special Needs Planners and, by invitation, the Special Needs Alliance, the national not-for-profit association of special needs planning attorneys, is President of SIBS (Supporting Illinois Brothers and Sisters), the Illinois chapter of the national Sibling Leadership Network, which is an organization of adult siblings of individuals with intellectual disabilities, developmental Disabilities, mental illness, among other special needs, is a member of the Board of Directors of The Arc of Illinois, is a member of the Clearbrook Associate Board (Clearbrook is an agency serving over 7,000 children and adults with intellectual and developmental disabilities, one of whom is Benji’s brother Mitchell), is a member of the SEDOL (Special Education District of Lake County) Foundation Board of Directors, and serves on the Advisory Council of Encompass a joint venture that in partnership with Jewish Child & Family Services, Jewish United Fund, JVS Chicago, JCC Chicago, Keshet, and The Center for Enriched Living and Center for Independent Futures, seeks to provide adults with I/DD a full array of financially sustainable, community-based services and supports.

Having Mitchell as a brother profoundly shaped who Benji is today, and thus the type of law he chose to practice. His personal experiences as a sibling offer a unique perspective into the responsibilities that come with caring for a sibling with special needs. Now, as an adult, those sometimes present and future responsibilities he will share with his older sister regarding his brother’s care, are a concern that he shares with all brothers and sisters of individuals with special needs.

 

North Shore Pediatric Therapy

North Shore Pediatric Therapy

North Shore Pediatric Therapy is a group of experienced and dedicated Thought Leaders in pediatric therapy. We believe passionately in helping each child blossom to their ultimate potential.

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Handling Breaks from School

Join one of our BCBAs, Jennifer Bartell, to learn about handling breaks from school. She discusses using multiple kinds of visual schedules.

NSPT offers services in Bucktown, Evanston, Highland Park, Lincolnwood, Glenview, Lake Bluff, Des Plaines, Hinsdale and Milwaukee! If you have questions or concerns about your child, we would love to help! Give us a call at (877) 486-4140 and speak to one of our Family Child Advocates!

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North Shore Pediatric Therapy

North Shore Pediatric Therapy

North Shore Pediatric Therapy is a group of experienced and dedicated Thought Leaders in pediatric therapy. We believe passionately in helping each child blossom to their ultimate potential.

More Posts - Website

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An Open Letter to My Fellow Families of Children and Adults with Special Needs

This guest post is from Benjamin Rubin.

While all parents need to make legal and financial plans for the future, parents of children with special needs must plan for a much longer time period and must take into consideration many moreblog-special-needs-letter-main-portrait details, laws and government regulations. My brother, Mitch, now 35, has Autism, and resides in a Clearbrook Group Home or CILA (Community Integrated Living Arrangement).

My father, my law partner and founder of Rubin Law, has always talked about what he calls the “parent’s prayer” and I want to begin by quoting this prayer:

“We all wish, no pray, that our child with special needs will have a long, happy and enjoyable life, BUT we wish, we pray that we live at least one day longer than our child does, and that we will not have to place the “obligation” or “responsibility” upon others. We hope, we pray, that we will always “be there” for our child. However, as difficult as it is to think about our dying before our child with special needs, we must! We have that obligation to our child with special needs, to our other children, to our chosen guardians, and to ourselves.”

As a sibling, and president of the Illinois Chapter of the national Sibling Leadership Network, I share a common sense of future responsibility with my fellow siblings and while we may not talk about it, it is in the back of all of our minds. We ask ourselves, what will happen when my parents aren’t here anymore? Who will care for my sibling? The importance of our parents planning for our brother or sister with special needs is even more essential to us and our future reality than to our parents.

NSPT offers services in Bucktown, Evanston, Highland Park, Lincolnwood, Glenview, Lake Bluff, Des Plaines, Hinsdale and Milwaukee. If you have questions or concerns about your child, we would love to help! Give us a call at (877) 486-4140 and speak to one of our Family Child Advocates!

New Call-to-Action
bnrbarmjrBenjamin Rubin limits his law practice, as does the firm of Rubin Law, to Special Needs Legal and Future Planning for his fellow families of individuals with special needs. Benji serves as Vice-Chair of the American Bar Association’s Special Needs Planning Committee, is a member of both the Academy of Special Needs Planners and, by invitation, the Special Needs Alliance, the national not-for-profit association of special needs planning attorneys, is President of SIBS (Supporting Illinois Brothers and Sisters), the Illinois chapter of the national Sibling Leadership Network, which is an organization of adult siblings of individuals with intellectual disabilities, developmental Disabilities, mental illness, among other special needs, is a member of the Board of Directors of The Arc of Illinois, is a member of the Clearbrook Associate Board (Clearbrook is an agency serving over 7,000 children and adults with intellectual and developmental disabilities, one of whom is Benji’s brother Mitchell), is a member of the SEDOL (Special Education District of Lake County) Foundation Board of Directors, and serves on the Advisory Council of Encompass a joint venture that in partnership with Jewish Child & Family Services, Jewish United Fund, JVS Chicago, JCC Chicago, Keshet, and The Center for Enriched Living and Center for Independent Futures, seeks to provide adults with I/DD a full array of financially sustainable, community-based services and supports.

Having Mitchell as a brother profoundly shaped who Benji is today, and thus the type of law he chose to practice. His personal experiences as a sibling offer a unique perspective into the responsibilities that come with caring for a sibling with special needs. Now, as an adult, those sometimes present and future responsibilities he will share with his older sister regarding his brother’s care, are a concern that he shares with all brothers and sisters of individuals with special needs.

North Shore Pediatric Therapy

North Shore Pediatric Therapy

North Shore Pediatric Therapy is a group of experienced and dedicated Thought Leaders in pediatric therapy. We believe passionately in helping each child blossom to their ultimate potential.

More Posts - Website

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Age Appropriate Toys for Children with Autism

It’s the holiday season and everyone is out shopping for family! If you’re looking for age appropriate toys for children with Autism, then check out this age-by-age list:blog-autism-toys-main-landscape

0-18 months

Goals of Play:

  • Manipulate and explore a variety of toys
  • Show variation in play
  • Demonstrate generalization by playing with toys in a variety of environments
  • Engage in movement play (gross motor play)
  • Cause-and-effect play

Toy Ideas:

  • Blocks (Duplo blocks or Large Lego)
  • Cause and Effect Toys
    • Car Ramps
    • Pop-up Toys
    • Push-and-Pull Toys
  • Simple puzzles (individual/non-adjoining pieces)

18-30 months

Goals of Play:

  • Toys with multiple parts (learning to look for pieces and assemble)
  • Using toys for their actual functions (i.e building blocks rather than just dumping them out of a container)
  • Play with everyday items in creative ways (i.e. pretends a marker is a magic wand)
  • Gross motor play on play structures/playground equipment

Toy Ideas:

  • Doll houses/dolls (i.e. Little People sets)
  • Tea party set
  • Pretend Food
  • Smaller blocks/Lego/K’nex blocks
  • Potato Head
  • Train set
  • More complicated puzzles (such as those with adjoining pieces)

30-48 months

Goals of Play:

  • Spontaneous engagement in pretend or imaginary play
  • Arts and Crafts activities
  • Drawing and writing in pre-academic activity books
  • Social play becomes a focus

Toy Ideas:

  • Dress up clothes
  • Play Kitchen
  • Board games or other games that encourage turn-taking
  • Arts and Crafts materials- paint, markers, glitter, glue, dot markers
  • Pre-academic workbooks (can be found online or in a variety of bookstores)

Resources:

Sundberg, M. L. (2008) Verbal behavior milestones assessment and placement program: The VB-MAPP. Concord, CA: AVB Press.

NSPT offers services in Bucktown, Evanston, Highland Park, Lincolnwood, Glenview, Lake Bluff, Des Plaines, Hinsdale and Milwaukee! If you have questions or concerns about your child, we would love to help! Give us a call at (877) 486-4140 and speak to one of our Family Child Advocates!

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Rachel Gossan

Rachel Gossan

Rachel Gossan is a Board Certified Behavior Analyst at North Shore Pediatric Therapy. Rachel has worked with children of varying ability and ages since graduating from Michigan State University with a Master of Arts in Special Education with a focus on autism, and a graduate certification in Applied Behavior Analysis. Rachel has a great deal of experience designing individualized programs to increase social, play, functional, and academic skills for children with autism and related disabilities.

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Executive Functioning Skills: How Can I Help My Child?

Executive Functions are a set of higher order mental processes that allow an individual, or in this case, children; the ability to control their thoughts, actions, and attention in their ever-changingblog-executive-functioning-main-landscape environment. Often, children can present with executive functioning issues as a result of many different factors such as Autism and ADHD.

Below are some executive functioning skills and how they present in both individuals with normal and poor executive functioning, and some tools/strategies for parents:

Skill Example Tools
Organization Your child has trouble being organized or often loses, or misplaces items. Create a “home space” for your child’s items. This can include simply labeling areas of the home where items should be stored, so your child knows where to place items and lowers the risk of loss. Make checklists or use planners to help your child create a schedule.
Working Memory Your child easily forgets what they just heard, or what they were asked to do. Make connections in every lesson. Have you ever heard of ROY G. BIV? – this is how most people remember the colors of the rainbow. When teaching new content such as tying a shoe use cute, age appropriate analogies such as the bunny rabbit in the hole. Also, helping your child visualize information by writing it down, drawing pictures, and even becoming the teacher are great tools as well.
Self-monitoring Your child may not seem aware of themselves such as when they are doing well. Behavior charts are a great tool to help your child self-manage their own behavior. Choose an important behavior for your child to manage and how often you would like for your child to “check in” on this behavior.
Task Initiation/Planning and Prioritizing Your child takes forever to get started on a particular task or has trouble planning activities. Break whole tasks down into smaller achievable steps. If the desired result is for your child to complete an entire homework sheet, maybe setting a goal to do the first 2 problems together can be a happy medium. Also allowing your child to take breaks or receive rewards between tasks are a good strategy as well.
Flexibility Your child often has trouble with new ideas, transitions and spontaneity. Visual schedules and first/then language are your biggest friend. For a child who has trouble being flexible, try to alert your child to changes in routine as far in advance as you can. To help combat rigidity such as not wanting to try a new food, try to approach slow and steady first. This can include tasting a small amount of a new food instead of a large portion.
Impulse/Emotional Control Your child often has trouble controlling their emotions and impulses when they are sad, happy, or angry. Speak and repeat. When providing directions to a child, if applicable, state the directions remembering to adhere to your child’s learner and listener styles, and then have your child repeat back to you. Use social stories and modeling: For example, if your child often gets upset when they lose a game, a social story can help teach tools on how to act in this situation.

NSPT offers services in Bucktown, Evanston, Highland Park, Lincolnwood, Glenview, Lake Bluff, Des Plaines, Hinsdale and Milwaukee! If you have questions or concerns about your child, we would love to help! Give us a call at (877) 486-4140 and speak to one of our Family Child Advocates!

Meet-With-An-Applied-Behavior-Analyst

Faith Champ

Faith Champ

Faith Champ is a Board Certified Behavior Analyst with over four years experience in the field of Applied Behavior Analysis. She earned her Master of Arts in Psychology and Certificate of BCBA Re-specialization from The Chicago School of Professional Psychology. Faith spent three years focusing on the pediatric population primarily in home where she worked to address behavioral concerns during meal time, play time, after- school academics/tutoring, potty-training, parent-coaching and bed-time support. Faith has extensive experience in providing school support through IEP meetings, as a shadow/school aide and building rapport with teachers and school staff. Additional education experience include Graduate certificates in Child Advocacy and Public Policy, and Early Childhood Administration, Management, and Leadership.

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